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We are not just participants, we are in charge: the NACCHO ear trial and the process for Aboriginal community controlled health research

James Cook University ePrints (JCU ePrints)

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Title We are not just participants, we are in charge: the NACCHO ear trial and the process for Aboriginal community controlled health research
 
Creator Couzos, Sohie
Lea, Traven
Murray, Richard
Culbong, Margaret
 
Description Objective Methodological criteria that characterise ethically sound community-based studies are often described in overviews but are rarely documented in clinical studies. Research investigating the health of Aboriginal Australians is often small-scale, descriptive and largely driven by non-Indigenous people. The 'community-controlled' model of research relating to Aboriginal peoples health is a form of 'participatory' research that shifts the balance of control towards those being researched. This paper describes the methodological issues and principles that underpin community-controlled health research; their practical application; and encourages their adoption in research involving Indigenous populations.

Design Descriptive report of the methods used to conduct the landmark Aboriginal community-controlled multi-centre double-blind randomised controlled clinical ear trial investigating ototopical treatments for chronic suppurative otitis media.

Results The characteristics of the community-controlled research model are illustrated under the headings of: setting the research agenda; research project planning and approval; conduct of research; and analysis, dissemination and application of findings.

Conclusion The 22 methodological elements which defined the community-controlled design of the ear trial may assist community groups, external research bodies and funding agencies to improve the acceptability, quality and scope of research involving Indigenous peoples. Aboriginal community-controlled organisations are well placed to lead research, which can be interventional and of a high scientific standard without compromising the values and principles of those being researched. With over 120 Aboriginal community-controlled health services (ACCHSs) across Australia, the potential exists for these services to engage in multi-centre research to realise solutions to health problems faced by Indigenous Australians.
 
Publisher Routledge
 
Date 2005-05
 
Type Article
PeerReviewed
 
Format application/pdf
 
Identifier http://eprints.jcu.edu.au/4514/1/4514_Murray_2005.pdf
Couzos, Sohie, Lea, Traven, Murray, Richard, and Culbong, Margaret (2005) We are not just participants, we are in charge: the NACCHO ear trial and the process for Aboriginal community controlled health research. Ethnicity and Health, 10 (2). pp. 91-111. ISSN 1465-3419
 
Relation http://dx.doi.org/10.1080/13557850500071038
http://eprints.jcu.edu.au/4514/